When Ableism Meets a Pandemic: Narratives, Disability and COVID-19

Abstract

The United States’ response to the COVID-19 pandemic of 2020 has been shaped by the country’s pre-existing narratives around disability. The master narrative of disability presents disability as a static condition that inherently lowers a person’s quality of life. This creates bias in physicians dealing with disabled patients, since under the master narrative’s logic disability is a negative trait that must be eradicated or cured. This troubling view has wider ramifications during a global pandemic as well. The COVID-19 pandemic has reshaped everybody’s relationship with time, bringing even nondisabled people closer to the experience of disability. However, the federal government and many state governments adhered as closely as possible to able-bodied conceptions of time. This has hindered the United States’ pandemic response by misprioritizing “reopening the economy” even at the expense of people’s lives. This creates a cycle, because this mismanaged response has led the country into even greater uncertainty about the pandemic, which moves everybody even closer to disabled conceptions of time. Had the master narrative not been so powerful, perhaps the United States could have responded more effectively to the COVID-19 pandemic.