Loading...
Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)
McCarron, Mary McCausland, Darren McGlinchey, Eimear Bowman, Sarah Foley, Michael Haigh, Margaret Burke, Eilish McCallion, Philip
McCarron, Mary
McCausland, Darren
McGlinchey, Eimear
Bowman, Sarah
Foley, Michael
Haigh, Margaret
Burke, Eilish
McCallion, Philip
Citations
Altmetric:
Genre
Journal article
Date
2022-02-21
Advisor
Committee member
Group
Department
Social Work
Permanent link to this record
Collections
Research Projects
Organizational Units
Journal Issue
DOI
http://dx.doi.org/10.1016/j.ridd.2022.104197
Abstract
Background: Longitudinal study of people with intellectual disability and other difficult to reach populations requires specific recruitment and retention strategies to be successful. Aims: This paper provides a case study of participant recruitment and retention for a longitudinal study of ageing among older adults with intellectual disability in Ireland. Methods and procedures: Development and implementation of strategies to recruit and retain participants with intellectual disability aged 40+ years, for a longitudinal study comprising four data collection waves over more than a decade, are reported. Recruitment and retention outcomes are assessed alongside factors of successful implementation. Outcomes and results: A nationally representative sample of 753 individuals with intellectual disability was recruited for wave 1 of the study. Multiple retention strategies aimed to reduce barriers to participation and create a project community and study bond, underpinned by a Values Framework and commitment to PPI. After four waves over 11 years, 87.1 % of surviving participants were retained. Conclusions and implications: Successful recruitment and retention of people with intellectual disabilities in longitudinal studies is possible when the approach taken is personal, flexible, and innovative; participant burden is minimised; the research team is skilled and sensitive to needs of participants; and where involvement of the study population guides development and implementation of specific and bespoke strategies.
Description
Citation
Mary McCarron, Darren McCausland, Eimear McGlinchey, Sarah Bowman, Michael Foley, Margaret Haigh, Eilish Burke, Philip McCallion, Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Research in Developmental Disabilities, Volume 124, 2022, 104197, ISSN 0891-4222, https://doi.org/10.1016/j.ridd.2022.104197.
Citation to related work
Elsevier
Has part
Research in Developmental Disabilities, Vol. 124
ADA compliance
For Americans with Disabilities Act (ADA) accommodation, including help with reading this content, please contact scholarshare@temple.edu