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A BETTER DEATH, DOES HAVING AN ADVANCE DIRECTIVE MAKE A DIFFERENCE AT THE END OF LIFE?
Cramer-Manchin, Bettyann
Cramer-Manchin, Bettyann
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Thesis/Dissertation
Date
2020
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Urban Bioethics
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http://dx.doi.org/10.34944/dspace/2713
Abstract
Death is inevitable, and research indicates that 80% of Americans wish to die at home. Does anyone know those wishes? Advance directives outline those wishes and personal decisions. Do advance directives make a significant difference in the experience of death for the patient, loved ones, and clinicians? Through interviews with loved ones of those who have died, as well as legal representative and a physician, this thesis examines the benefits and obstacles of having an advance directive, as well as the issues that have a high impact on whether and why an advance directive is written. Policy recommendations, business tactics, and community-based solutions are proposed to address these issues. It is clear that access to healthcare and the clinical professionals who can discuss end of life issues has a major impact on whether an advance directive is considered by the patient, along with health literacy skills and knowledge.
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