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BIPOC Experiences of (anti-)Racist Patient Engagement in Adolescent and Young Adult Oncology Research: an Electronic Delphi Study
Cheung, Christabel K. Miller, Kimberly A. Goings, Trenette Clark Thomas, Bria N. Lee, Haelim Brandon, Rachel E. Katerere-Virima, Thuli Helbling, Laura E. Causadias, José M. Roth, Michael E.
Cheung, Christabel K.
Miller, Kimberly A.
Goings, Trenette Clark
Thomas, Bria N.
Lee, Haelim
Brandon, Rachel E.
Katerere-Virima, Thuli
Helbling, Laura E.
Causadias, José M.
Roth, Michael E.
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Journal article
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2024-01-10
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Podiatric Medicine
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https://doi.org/10.2217/fon-2023-0771
Abstract
Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients’ experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients’ direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.
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Cheung, C. K., Miller, K. A., Goings, T. C., Thomas, B. N., Lee, H., Brandon, R. E., … Tucker-Seeley, R. D. (2024). BIPOC Experiences of (anti-)Racist Patient Engagement in Adolescent and Young Adult Oncology Research: an Electronic Delphi Study. Future Oncology, 20(9), 547–561. https://doi.org/10.2217/fon-2023-0771
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Taylor & Francis
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Future Oncology , Vol. 20, Iss. 9
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Attribution-NonCommercial-NoDerivs CC BY-NC-ND