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dc.contributor.advisorJones, Nora L.
dc.creatorGramszlo, Colette
dc.date.accessioned2022-08-15T18:56:45Z
dc.date.available2022-08-15T18:56:45Z
dc.date.issued2022
dc.identifier.urihttp://hdl.handle.net/20.500.12613/7989
dc.description.abstractCongenital heart disease (CHD) is the most common birth defect and often resultsin neurodevelopmental impairments and psychological problems which impede educational and occupational attainment and decrease overall quality of life into adulthood. While morbidity and mortality outcomes have improved over the last several decades, non-Hispanic black and Hispanic children continue to experience a disproportionate burden of CHD. An urban bioethics approach to disparities in cardiac neurodevelopmental outcomes necessitates an examination of the context, setting, and structures in which CHD care is delivered. This thesis proposes a model through which access to and quality of cardiac care impact disparities in neurodevelopmental outcomes. The thesis describes an initial evaluation of the proposed model conducted through retrospective record review. Though research funding and hospital resources have historically flowed toward optimizing surgical and other clinical care techniques, results indicate that factors such as poverty and other social determinants of health have a greater impact on many CHD outcomes. An urban bioethics framework asks us to additionally consider the ways in which cardiac care teams act as barriers to high quality care. Findings are discussed in terms of next steps and a proposed qualitative study to further evaluate results.
dc.format.extent50 pages
dc.language.isoeng
dc.publisherTemple University. Libraries
dc.relation.ispartofTheses and Dissertations
dc.rightsIN COPYRIGHT- This Rights Statement can be used for an Item that is in copyright. Using this statement implies that the organization making this Item available has determined that the Item is in copyright and either is the rights-holder, has obtained permission from the rights-holder(s) to make their Work(s) available, or makes the Item available under an exception or limitation to copyright (including Fair Use) that entitles it to make the Item available.
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/
dc.subjectEthics
dc.subjectDevelopmental psychology
dc.subjectCongenital heart disease
dc.subjectHealth disparities
dc.subjectNeurodevelopment
dc.subjectUrban bioethics
dc.titleAN URBAN BIOETHICS APPROACH TO UNDERSTANDING DISPARITIES IN NEURODEVELOPMENTAL OUTCOMES FOR CHILDREN WITH CONGENITAL HEART DISEASE
dc.typeText
dc.type.genreThesis/Dissertation
dc.description.departmentUrban Bioethics
dc.relation.doihttp://dx.doi.org/10.34944/dspace/7961
dc.ada.noteFor Americans with Disabilities Act (ADA) accommodation, including help with reading this content, please contact scholarshare@temple.edu
dc.description.degreeM.A.
dc.identifier.proqst14996
dc.creator.orcid0000-0003-2644-936X
dc.date.updated2022-08-11T22:10:29Z
refterms.dateFOA2022-08-15T18:56:46Z
dc.identifier.filenameGramszlo_temple_0225M_14996.pdf


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