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    A BETTER DEATH, DOES HAVING AN ADVANCE DIRECTIVE MAKE A DIFFERENCE AT THE END OF LIFE?

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    Genre
    Thesis/Dissertation
    Date
    2020
    Author
    Cramer-Manchin, Bettyann
    Advisor
    Rocco, Providenza Loera
    Department
    Urban Bioethics
    Subject
    Medical Ethics
    Advance Directives
    Death
    End of Life Care
    Health Literacy
    Healthcare
    Urban
    Permanent link to this record
    http://hdl.handle.net/20.500.12613/2731
    
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    DOI
    http://dx.doi.org/10.34944/dspace/2713
    Abstract
    Death is inevitable, and research indicates that 80% of Americans wish to die at home. Does anyone know those wishes? Advance directives outline those wishes and personal decisions. Do advance directives make a significant difference in the experience of death for the patient, loved ones, and clinicians? Through interviews with loved ones of those who have died, as well as legal representative and a physician, this thesis examines the benefits and obstacles of having an advance directive, as well as the issues that have a high impact on whether and why an advance directive is written. Policy recommendations, business tactics, and community-based solutions are proposed to address these issues. It is clear that access to healthcare and the clinical professionals who can discuss end of life issues has a major impact on whether an advance directive is considered by the patient, along with health literacy skills and knowledge.
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