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dc.contributor.advisorJones, Nora L.
dc.creatorFlanagan, Ellen Cecelia
dc.date.accessioned2020-10-26T18:25:55Z
dc.date.available2020-10-26T18:25:55Z
dc.date.issued2018
dc.identifier.urihttp://hdl.handle.net/20.500.12613/1224
dc.description.abstractIn the current healthcare landscape, parents generally make decisions regarding whether or not their children are allowed to take part in clinical research, with the general assumption being that parents know what is best for children. Investigations have been conducted regarding what is likely to lead parents to consent or not consent to their child’s participation in a trial, but research plans seldom incorporate the consideration that not all parents come into the consent process with equal social, academic, and economic footing. Since the burden of the ultimate decision lies primarily on the parents, it is supremely important that they are capable of making a well-informed and thoughtful choice. Bioethical understanding of the influence of parental decisions in clinical research must consider demographic variables and how they may affect parents’ decisions to allow or disallow their child to participate in a clinical trial. Those differences could affect the consent process and have ramifications for the research findings, as research results are affected in numerous ways by which children do, and do not, participate in studies. This paper looks specifically at parents in the process of informed consent for pediatric research, taking into account several social determinants of health and how they affect who participates in research and how that affects research as a whole.
dc.format.extent33 pages
dc.language.isoeng
dc.publisherTemple University. Libraries
dc.relation.ispartofTheses and Dissertations
dc.rightsIN COPYRIGHT- This Rights Statement can be used for an Item that is in copyright. Using this statement implies that the organization making this Item available has determined that the Item is in copyright and either is the rights-holder, has obtained permission from the rights-holder(s) to make their Work(s) available, or makes the Item available under an exception or limitation to copyright (including Fair Use) that entitles it to make the Item available.
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/
dc.subjectMedical Ethics
dc.subjectEthics
dc.subjectInformed Consent
dc.subjectPediatric Research
dc.subjectSocial Determinants of Health
dc.subjectUrban Bioethics
dc.titleAN URBAN BIOETHICS APPROACH TO PARENTAL INFORMED CONSENT FOR PEDIATRIC CLINICAL RESEARCH
dc.typeText
dc.type.genreThesis/Dissertation
dc.description.departmentUrban Bioethics
dc.relation.doihttp://dx.doi.org/10.34944/dspace/1206
dc.ada.noteFor Americans with Disabilities Act (ADA) accommodation, including help with reading this content, please contact scholarshare@temple.edu
dc.description.degreeM.A.
refterms.dateFOA2020-10-26T18:25:55Z


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